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Latest Updates

Retta Beeryreplied to: RE: Re your post Retta

God is SO good and He works in all the details of our lives. Thank you for sharing your heart and gratitude for all the blessings and trials that you...

4 weeks ago

kiwigirlcreated the topic: Re your post Retta

Awwwh loved reading your post Retta about Noah and Alexis 13 years on. AMEN God is great and here for all of us. Even in the desperate times lean on...

1 month ago

Retta Beery added a new article Harold Varmus and exiting the NCI

1 month ago

Retta Beery added a new article Head of FDA, Margaret Hamburg, resigns

3 months ago

Retta Beeryreplied to: RE: Hi from New Zealand

Hello, I don't know Amy Haynes - sorry. I appreciate your posting as you never know if someone else may know her. I didn't find her on our site eit...

3 months ago

kiwigirlreplied to: RE: Hi from New Zealand

Hi Retta, can I ask many years ago I had contact with a lady by the name of Amy Haynes, she lived in Milpitas CA. She also had DRD we lost contact ma...

3 months ago

kiwigirlreplied to: RE: Hi from New Zealand

New Years Greetings to everyone out there. I thought I would post an interesting update this morning. We went to friends for a BBQ the other weekend ...

3 months ago

Retta Beery added a new article Hope for 2015

4 months ago

Retta Beery added a new article Smartphones are the future of medicine

4 months ago

Featured Video
A Family Changed Forever By Sequencing Technology - Meet The Beerys
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The Beerys talk about the family's journey of discovering the twins misdiagnosis of Cerebral Palsy and that they actually had Dystonia
by Retta Beery | 7,317 views | 2 years ago
Latest Video
Noah and Alexis's story reach others-the Today Show
Twins wrongly diagnosed with cerebral palsy After initially being told their children have cerebral palsy, the parents of twins look for other causes...
by Raymond Raffety | 977 views | 8 months ago
Latest Journal Entry

Celebrating 13 years of freedom for Noah and Alexis!

Our family is rejoicing as we celebrated Noah and Alexis’s 13 years of freedom yesterday!!  On April 4th of 2002, God led me, after years of research, to three days of a very specific prayer asking for guidance, then to the article that changed Noah and Alexis’s life forever.  A life of wheelchairs, feeding tubes, and being trapped inside non-functioning bodies to a life of f...
Latest Article
After 33 years of being misdiagnosed, Jean Sharon Abbott has new abilities
Jean Sharon Abbott was diagnosed with Cerebral Palsy when she was a child.  She endured needless, invasive and life changing surgeries, and was unable to fully function for 33 years.  It wasn't until she saw a new neurologist, at the age of 33, that she was given a new diagnosis that gave her the ability to do things she had never been able to do.  Jean's life is a great example of ...
Latest Links

Retta Beeryhttp://www.kusi.com/story/26195662/120m-donated-to-rady-childrens-for-pediatric-genetic-institute?autoStart=true&topVideoCatNo=default&clipId=10438642


Noah, Alexis, and I were honored to be a part of an announcement on Monday at the Rady's Children

8/8/2014

    Retta Beeryhttp://pndassoc.org/

    9/11/2013

      Retta BeeryAlex has a mystery diagnosis, while his family is searching for answers....
      http://vimeo.com/51270922

      3/13/2013

        Retta BeeryLink for different forms of Dystonia and individual gene tests noting specific mutations:
        http://omim.org/search?index=entry&start=1&limit=10&search=dystonia&sort=score desc, prefix_sort desc

        3/12/2013

          Retta BeeryMyclonic Dystonia
          http://omim.org/entry/159900?search=dystonia&highlight=dystonia

          3/12/2013