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Latest Updates

Retta Beeryuploaded video

1 week ago

    Retta Beery added a new article Make September Dystonia Awareness Month

    2 weeks ago

    Retta Beeryreplied to: RE: Hi from New Zealand

    It is so good to hear how much you are able to do, especially with your child!! Sleep restores your dopamine levels, so it is imperative that you alw...

    2 weeks ago

    kiwigirlreplied to: RE: Hi from New Zealand

    Thanks Retta for your reply. I was always told that for my body to do all the things I do was a big push on it. Also getting older you know, I hav...

    1 month ago

    Retta Beeryhttp://www.kusi.com/story/26195662/120m-donated-to-rady-childrens-for-pediatric-genetic-institute?autoStart=true&topVideoCatNo=default&clipId=10438642


    Noah, Alexis, and I were honored to be a part of an announcement on Monday at the Rady's Children

    1 month ago

      Retta Beeryhttp://www.kusi.com/story/26195662/120m-donated-to-rady-childrens-for-pediatric-genetic-institute?autoStart=true&topVideoCatNo=default&clipId=10438642

      1 month ago

        Retta Beeryreplied to: RE: Hi from New Zealand

        Thanks so much for sharing your journey with all of us! It's hard to imagine going through such pain while caring for your little 4 year old! We are...

        1 month ago

        kiwigirlreplied to: RE: Hi from New Zealand

        Hi there everyone Just popping in to say hi, and give a little update. I had a check up with my GP few months back and due to some pain at night a...

        1 month ago

        Retta Beery added a new article New website for Parkinson's patients

        1 month ago

        Retta Beeryreplied to: RE: Sinemate

        There are quite a few labs that are now doing full exome sequencing, if that's what you are thinking of doing. Rare Genomics works with labs around t...

        2 months ago

        replied to: RE: Sinemate

        I have 23 years brother. He was diagonsed with cerebral palsy when he was 2 years old. 3 years ago we took him to new york peresbetarian hospital. The...

        2 months ago

        Retta Beery added a new article DNA test is diagnosing infectious disease

        3 months ago

        Retta Beery added a new article NIH's plan to fund the Brain Initiative

        3 months ago

        Featured Video
        A Family Changed Forever By Sequencing Technology - Meet The Beerys
        starstarstarstarstar
        The Beerys talk about the family's journey of discovering the twins misdiagnosis of Cerebral Palsy and that they actually had Dystonia
        by Retta Beery | 4,817 views | 1 years ago
        Latest Video
        Family watches Beery story on "The Doctors" to find answers for their daughter
        Family watches Noah and Alexis's story on "The Doctors" show and it leads them to new diagnosis for their daughter.
        by Retta Beery | 126 views | 2 weeks ago
        Latest Journal Entry

        Make September Dystonia Awareness Month

        Dystonia continues to effect a huge amount of people in the world and yet so many have never heard of it.  We continue to find so many other patients, just like Noah and Alexis, that are misdiagnosed.  There is a petition to make September the Dystonia Awareness month.  Please consider signing the petition so that more people will understand what Dystonia is and more people will be ...
        Latest Article
        Scientists out of work as NIH funding continues to go down
        Many scientists are leaving their fields as funding for biomedical research continues to dwindle.  More conservative thinking is safer to get funding and we are losing some "outside of the box" thinking that has led to many breakthroughs in science in the past.  To read more or listen to this NPR piece, copy and paste the following URL:  http://www.npr.org/blogs/health/2014/09/09/34...
        Latest Links

        Retta Beeryhttp://www.kusi.com/story/26195662/120m-donated-to-rady-childrens-for-pediatric-genetic-institute?autoStart=true&topVideoCatNo=default&clipId=10438642


        Noah, Alexis, and I were honored to be a part of an announcement on Monday at the Rady's Children

        1 month ago

          Retta Beeryhttp://pndassoc.org/

          9/11/2013

            Retta BeeryAlex has a mystery diagnosis, while his family is searching for answers....
            http://vimeo.com/51270922

            3/13/2013

              Retta BeeryLink for different forms of Dystonia and individual gene tests noting specific mutations:
              http://omim.org/search?index=entry&start=1&limit=10&search=dystonia&sort=score desc, prefix_sort desc

              3/12/2013

                Retta BeeryMyclonic Dystonia
                http://omim.org/entry/159900?search=dystonia&highlight=dystonia

                3/12/2013