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Latest Updates

kiwigirlreplied to: RE: Hi from New Zealand

New Years Greetings to everyone out there. I thought I would post an interesting update this morning. We went to friends for a BBQ the other weekend ...

1 day ago

Retta Beery added a new article Hope for 2015

2 weeks ago

Retta Beery added a new article Smartphones are the future of medicine

2 weeks ago

Retta Beeryreplied to: RE: megan soltani colorado update

I am so sorry to hear about the lack of help for your sister. Can you request an earlier appointment for her and attend the appointment with her and ...

1 month ago

Laceyreplied to: RE: megan soltani colorado update

So we have gotten lost in the world of testing... As far as I know next apt will be a year from the last visit that was in Oct 2014. Dr had discussed ...

1 month ago

replied to: RE: Rambut bagai Terlahir Kembali

http://techbloggies.com/story.php?title=rambut-bagai-terlahir-kembali http://www.insideuview.com/ActivityFeed/tabid/60/UserId/107201/Default.aspx

1 month ago

Retta Beery added a new article NIH funding to help with Rare Disease

3 months ago

Raymond Raffetyuploaded video

3 months ago

    Retta Beeryuploaded video

    4 months ago

      Retta Beery added a new article Make September Dystonia Awareness Month

      5 months ago

      Retta Beery added a new article Colorado boy has surgery and is now walking

      5 months ago

      Retta Beeryreplied to: RE: Hi from New Zealand

      It is so good to hear how much you are able to do, especially with your child!! Sleep restores your dopamine levels, so it is imperative that you alw...

      5 months ago

      kiwigirlreplied to: RE: Hi from New Zealand

      Thanks Retta for your reply. I was always told that for my body to do all the things I do was a big push on it. Also getting older you know, I hav...

      5 months ago

      Retta Beeryhttp://www.kusi.com/story/26195662/120m-donated-to-rady-childrens-for-pediatric-genetic-institute?autoStart=true&topVideoCatNo=default&clipId=10438642


      Noah, Alexis, and I were honored to be a part of an announcement on Monday at the Rady's Children

      5 months ago

        Retta Beeryhttp://www.kusi.com/story/26195662/120m-donated-to-rady-childrens-for-pediatric-genetic-institute?autoStart=true&topVideoCatNo=default&clipId=10438642

        5 months ago

          Featured Video
          A Family Changed Forever By Sequencing Technology - Meet The Beerys
          starstarstarstarstar
          The Beerys talk about the family's journey of discovering the twins misdiagnosis of Cerebral Palsy and that they actually had Dystonia
          by Retta Beery | 6,579 views | 2 years ago
          Latest Video
          Noah and Alexis's story reach others-the Today Show
          Twins wrongly diagnosed with cerebral palsy After initially being told their children have cerebral palsy, the parents of twins look for other causes...
          by Raymond Raffety | 621 views | 4 months ago
          Latest Journal Entry

          Hope for 2015

          As we enter into the new year, my Hope for the future of medicine is strong.  There have been many advances made in the past few years and we have witnessed many lives that have been changed.  Answers.  Treatments.  Miracles.  With the promise of hope so close to home, we have also witnessed many lives that have not had such a positive outcome.  Lives that are hanging...
          Latest Article
          Smartphones are the future of medicine
          Smartphones continue to give us access to all of our needs, including banking, entertainment, connectivity and more.  They will soon help patients take more control of their own medical needs.  Eric Topol describes how they are already being used to take blood-pressure readings and electrocardiograms (ECG's). To read this Wall Street Journal article by Eric Topol, copy and paste:  ...
          Latest Links

          Retta Beeryhttp://www.kusi.com/story/26195662/120m-donated-to-rady-childrens-for-pediatric-genetic-institute?autoStart=true&topVideoCatNo=default&clipId=10438642


          Noah, Alexis, and I were honored to be a part of an announcement on Monday at the Rady's Children

          5 months ago

            Retta Beeryhttp://pndassoc.org/

            PND Association | Home
            The PND association website is a resource for families affected by dopamine related pediatric neurotransmitter diseases (PND

            9/11/2013

              Retta BeeryAlex has a mystery diagnosis, while his family is searching for answers....
              http://vimeo.com/51270922

              Mystery Illness - Relentless Search
              This is Alex's story. An otherwise happy kid who has an unknown mystery illness. This invisible disease has slowly over the course of a year taken away Alex's abilities…

              3/13/2013

                Retta BeeryLink for different forms of Dystonia and individual gene tests noting specific mutations:
                http://omim.org/search?index=entry&start=1&limit=10&search=dystonia&sort=score desc, prefix_sort desc

                Different forms of Dystonia and individual gene tests
                Link for different forms of Dystonia and individual gene tests noting specific mutations:

                3/12/2013

                  Retta BeeryMyclonic Dystonia
                  http://omim.org/entry/159900?search=dystonia&highlight=dystonia

                  Myclonic Dystonia
                  Myclonic Dystonia

                  3/12/2013