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New York Times publishes article about Dystonia

The New York times published an article yesterday that was written by a woman with Dystonia.  Her comments were profound as she shares her insights of how celebrities have the ability to make illness or rare disease well known but when there is no celebrity inflicted with a certain disease, it often goes unnoticed.  How do we change this and get behind rare disease in a way that will help advance diagnosis and treatment of rare disease?  

To read the article, go to:  http://www.nytimes.com/2013/05/19/opinion/sunday/disease-and-the-public-eye.html?_r=1&

Retta Beery posted on May 20, 2013