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02

Rare Disease advocates have made gains in awareness, but we are still lacking funding

Rare Disease week has illustrated the advancements that have been made in awareness toward Rare Disease, but we are still lacking treatments.  This is another example of the need for increased funding to the NIH, so that we can move toward more diagnosis and, ultimately, treatments.  To read Pharmexec article, written by patient advocate Steve Smith, copy and paste url :  http://www.pharmexec.com/rare-disease-week-progress-still-very-few-treatments

Retta Beery posted on April 02, 2015