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Entries for February 2013

22
The more we move into the area of personalized medicine, the more we see it is becoming a Big Data Problem.....read more.... http://www.pharmalot.com/2013/02/the-op-ed-entering-the-golden-age-of-big-data/

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Retta Beery posted on February 22, 2013
22
World Rare Disease Day is next week and the advocates for Rare disease will be gathering in DC to screen "Here.Us.Now".  Read more..... http://rareadvocates.org/cocktail-reception-movie-screening/

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Retta Beery posted on February 22, 2013
22
There's a team of entrepreneurs and others that have come together to give out millions of dollars to scientists that are willing to take risks, think big, and change our lives: http://www.nytimes.com/2013/02/20/science/new-3-million-prizes-awarded-to-11-in-life-sciences.html?_r=0

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Retta Beery posted on February 22, 2013
18
Gina Kolata, journalist for the New York Times, published a story today that featured Noah and Alexis's story.  Here's the link:  http://www.nytimes.com/2013/02/19/health/dna-analysis-more-accessible-than-ever-opens-new-doors.html?hp&_r=1&

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Retta Beery posted on February 18, 2013
14
World Rare Disease Day is coming up on February 28th.  To find out more information, or for help in raising awareness for Rare Disease Day, go to:  http://globalgenes.org/world-rare-disease-day/

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Retta Beery posted on February 14, 2013
13
FOR ORPHAN DRUG ACT AND NORD: A DAY TO REMEMBER AND CELEBRATE Rare Disease Patient Advocates Celebrate 30th Anniversary Today Washington DC, January 4, 2013----Thirty years ago today, President Ronald Reagan signed the Orphan Drug Act into law to encourage the development of treatments for the millions of Americans with rare diseases. The new law represented a triumph of patient advocat...

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Retta Beery posted on February 13, 2013
13
http://www.rarediseases.org/news-events/news/klugman-2012
Retta Beery posted on February 13, 2013