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Generalised dystonia

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This is also known as primary torsion dystonia or dystonia musculorum deformans. The usual age of onset is between 5 and 16 years. Parents or teachers may notice an abnormal turning in of the foot, an awkward gait or contractions of many different muscle groups. The involuntary dystonic movements may progress quickly to involve all the limbs and torso, but the rate of progression usually slows after adolescence.
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  • Founded: June 2010
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  • Founder: Retta Beery
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This is also known as primary torsion dystonia or dystonia musculorum deformans. The usual age of onset is between 5 and 16 years. Parents or teachers may notice an abnormal turning in of the foot, an awkward gait or contractions of many different muscle groups. The involuntary dystonic movements may progress quickly to involve all the limbs and torso, but the rate of progression usually slows after adolescence.

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