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seeking diagnosis and hope
Last Post 21 Apr 2009 03:44 AM by mandy harris. 5 Replies.
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mandy harrisUser is Offline
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21 Apr 2009 03:44 AM
    A friend connected me with your family's site after seeing your story on TLC and I find great hope in reading your children's story. I have two daughters, age 6 & 4. Alex was born with clubbed feet and dislocated hips. We believed that this was a random orthopedic occurrence and that future children would not be affected. By the time we began to realize that Alex had other issues, I was already pregnant with our second child. Alex didn't walk until she was two, always crawled on her fists,
    Retta BeeryUser is Offline
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    24 Apr 2009 03:42 PM
    <P>Hi Mandy,</P> <P>I'm so glad you found our site!&nbsp; There are many similiarities in Alex and Emma's symptoms that Noah and Alexis experienced.&nbsp; We attributed Noah and Alexis's waking up throughout the night as ni
    mandy harrisUser is Offline
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    30 Apr 2009 08:32 PM
    Thank you Retta. Alex had her MRI and lumbar puncture on Tuesday. I just spoke with the neurologist and nothing 'big bad or ugly' has came back yet. We are still waiting on other results. I did speak with him about DRD and he is completely open t
    Yvette CUser is Offline
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    14 May 2009 07:58 PM
    <P>Hi Mandy</P> <P>&nbsp;</P> <P>How did your appointment go?</P> <P>&nbsp;</P> <P>I have DRD and was also born with talipes. In my case, it also delayed the&nbsp;recognition of th
    mandy harrisUser is Offline
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    06 Jun 2009 02:09 AM
    Alex has now been on Sinemet for almost 4 weeks. She was started on a quarter of 25/100 tab, 3 times a day. Day two we noticed that she was suddenly able to sit on the floor and play a game without randomly falling over (as was very usual for her b
    Retta BeeryUser is Offline
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    10 Jun 2009 12:04 AM
    <P>Hi Mandy,</P> <P>First, I am overjoyed at reading your post!&nbsp; I'm so thankful that you included so much detail as it really gave me a great visual of Alex's response and improvement!!&nbsp; Praise God!</P> &l
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