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Today show piece
Last Post 03 Nov 2011 02:45 PM by Retta Beery. 1 Replies.
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EllesMomUser is Offline
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27 Oct 2011 03:47 PM
    Hi Retta: I saw the Today show piece, and you are such an inspiration. A month ago my 3 year old girl, Ellie, was diagnosed with a rare genetic disease affecting her brain. I am told by experts there is no cure or treatment. It is much different than what your children have, but it does affect motor skills and eventually children with Ellie’s disease are supposed to be paralyzed. She is not expected to live past her teens. I noticed her symptoms actually get better as the day goes on. As my husband puts it, she “gets her sea legs.” I was wondering if I could email you off line to get some advice on how to push the doctors for more or different answers. Thank you so much. Ellie’s mom – BETH
    Retta BeeryUser is Offline
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    03 Nov 2011 02:45 PM
    Hello,
    I'm so sorry to hear about your daughter. Yes, you may email me at Retta.beery@me.com and I would be more than happy to help in anyway possible.
    Retta
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