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The Beerys Dystonia Journal

We hope that this journal will help others better understand one family's journey with Dystonia.

Wednesday, September 08, 2010
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02
We are on a plane to Houston, Texas.  We are on our way to meet with the research scientists and doctors who are working on the sequencing projec...

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31
We checked into see Dr. Freedman at Rady’s Children’s hospital.  We are her first appointment and they take us right back.  Dr. ...

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30
I took Alexis to Rady’s Children’s hospital today to be tested for Cystic Fibrosis.  She has been asking a lot of questions about the...

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28
Alexis made it through another night and we are so grateful.  We have so many people praying for her, for health, for wisdom and discernment for ...

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