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The Beerys Dystonia Journal

We hope that this journal will help others better understand one family's journey with Dystonia.

Monday, February 06, 2012
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Entries for August 2010

31
We checked into see Dr. Freedman at Rady’s Children’s hospital.  We are her first appointment and they take us right back.  Dr. Gold comes in to take a history of Alexis.  It takes us well over an hour to write the “b...

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30
I took Alexis to Rady’s Children’s hospital today to be tested for Cystic Fibrosis.  She has been asking a lot of questions about the test, I explained that it’s just a sweat test.  She tells me that she hopes she has Cyst...

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28
Alexis made it through another night and we are so grateful.  We have so many people praying for her, for health, for wisdom and discernment for us, for answers and for healing.  We are all feeling exhausted as Alexis is coughing all night ...

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28
Alexis and Noah had a great birthday party!  Noah invited a few friends over and they had a great time playing games and hanging out.  Alexis had around 20 girls over, they swam, played games, ate and painted t-shirts.  They were such ...

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