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The Beerys Dystonia Journal

We hope that this journal will help others better understand one family's journey with Dystonia.

Sunday, May 20, 2012
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Entries for September 2011

29
Hello, I just posted an article, in the article section of our site, that talks about a study that Dr. Eric Topol will be starting this year.  He is already taking applications of patients wanting to be involved and it looks as if he will hav...

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22
My friend sent me a link to a Ted Med speech where Richard Resnick, the speaker uses our family as an example of what's going on in the genomic field of medicine.  We had no idea that he did this but are thrilled for the way he used it in his pr...

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21
CBS Early Morning show had a crew come out this summer and film a piece on our family and our journey with genomic sequencing.  They did a fabulous job with the piece and my brother has just added it to our site in the video section.  Pleas...

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18
It's been quite a while since I've posted in my journal.  Our family had a great summer vacation and all three of our kids are now in high school!  It's hard to believe Zach will be off to college in one year and Noah and Alexis are now fre...

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