Noah, Alexis and I flew out to Las Vegas on Sunday for a press event that took place just prior to the CES event.  It was the unveiling of the latest and greatest gadgets for 2012.  Life Technologies was unveiling their new Ion Proton Genetic Sequencer.  While the normal "gadgets" found at CES are the latest and greatest high tech televisions, electronic devices, etc. this is the first year for a biotech company to be onsite.  It was a little confusing to much of the press, at first, and then it they understood the reason for this small, little booth on the back row to be at the event.  The idea that this sequencer will cost $150k, sequence a whole genome in hours, and the cost to the consumer a mere $1k is unheard of!!  
The booth had large posters of Noah and Alexis, before and after, their diagnosis.  We had opportunity to share their story with many journalists who had never heard it.  We had the opportunity to be on a few live radio shows as well as television.  We prayed before the event, knowing that God had opened this door for us to walk through and we felt His peace which surpasses all understanding.  We are the "voice" for all those that are suffering from misdiagnosis or undiagnosed, who so desperately need this diagnostic tool to help them.  They have no voice, they are wandering around, from doctor to doctor, looking for answers but coming up empty handed.  They need a voice, they need someone to come in and give them answers, they need to know there is hope for their ailment.  We believe that God has placed us here, for such a time as this, to be a voice for the voiceless and to share His hope.  We also believe that whole genome sequencing will help hundreds of thousands of people find answers to the medical ailments that are robbing them of life.  
and so we continue to share and speak and use our voices......for all those that are unable to.

Retta