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The Beerys Dystonia Journal

We hope that this journal will help others better understand one family's journey with Dystonia.

Sunday, May 20, 2012
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02
I'm in San Francisco, getting ready to speak to the Presidential Commission for the study of Bioethical Issues. It's my hope and prayer that I would be a voice for all those patients that don't have a voice. I'm praying that God will speak through me this morning and, soon, whole genome sequencing will become a reality for many families who are searching for answers. They will have a live feed at: http://bioethics.gov/cms/node/636. I speak at 9:15 Pacific time today, Thursday, February 2nd. If you read this in time, say a prayer that God would work in mighty ways during this meeting. Retta