I took Alexis to her pediatrician today.  I want to let her know what’s going on and give her all the names and information of doctors who have done testing on Alexis in the past year.  I’m outraged that so many of the “specialists” are not sending her pediatrician her records.  Every time we have an appointment, I give her pediatrician’s information and request all records be sent.  I don’t understand the lack of communication that goes on in the medical field, the lack of sharing, the lack of pulling everything together into one central place to access.  There has to be a better way.

Alexis’s pediatrician ordered another chest x-ray and an x-ray of her sinuses.  It’s been about 4 months since her last x-rays, so she wants to make sure nothing new is going on.  We started Alexis on an antibiotic for a bacterial infection last week, just hoping it may help in some way.  It hasn’t.

I am starting to feel exhausted, emotionally and physically, as I watch my little girl start to get discouraged.  She is looking for someone to help her, some doctor who can come along side her and tell her everything is going to be alright.  I remember when Dr. Woessner told her, “Alexis, you are a mystery and I love a good mystery!  I’m going to solve this mystery for you, Alexis, and we are going to get you out there doing your sports again.”  Alexis and I were so hopeful, so full of excitement.  That was 8 months ago and Alexis’s health is spiraling downward.