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The Beerys Dystonia Journal

We hope that this journal will help others better understand one family's journey with Dystonia.

Sunday, May 20, 2012
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18
We had a producer from Singapore out to our home this weekend, along with a film crew from Los Angeles and one from San Diego.  We were interviewed, shot b-roll, and lots of family moments for a piece they are doing for Discovery channel in Asia...

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11
Wednesday, May 9th Joe and I met with Dr. Francis Collins, the Director of the NIH, and his director of communications on Wednesday.  Dr. Collins has done so much in his life time and I have so much respect for him. He continues to advance me...

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08
Tuesday, May 8th - Congressional Briefing I flew out to DC last week to speak at a Congressional briefing, to share Noah and Alexis's story.  Quite honestly, I have never been very politically active, but this is an incredible reason to be....

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29
Hello all! NOVA/PBS ran the piece last night titled, "Cracking Your Genetic Code."  I thought Sarah Holt, the producer, did a great job on putting it all together and giving an informed look at both sides of the "debate".  I also believe...

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