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Entries for March 2012

29
Hello all! NOVA/PBS ran the piece last night titled, "Cracking Your Genetic Code."  I thought Sarah Holt, the producer, did a great job on putting it all together and giving an informed look at both sides of the "debate".  I also believe that the more information, the better.  I speak to patients and patient's parents all the time and they are searching for answers.  While s...

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Retta Beery posted on March 29, 2012
28
NOVA will run a show tonight on KPBS titled, "Cracking Your Genetic Code."  You can find a preview at this link:  http://video.pbs.org/video/2195620092 .  NOVA producer, Sarah Holt, followed several families, including ours, to illustrate the extraordinary advances that have been made through genetic sequencing.  It is our hope and prayer that this will be another opportunity t...

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Retta Beery posted on March 28, 2012
22
Dr. Francis Collins, Director of NIH (National Health Institute), testified yesterday in his annual appearance before the house appropriations committee.    After concluding his prepared remarks, he told the story of Noah and Alexis, and the remarkable impact whole genome sequencing has had for them.   This is another huge step in advancing whole genome sequencing and person...

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Retta Beery posted on March 22, 2012
05
Hello, Our family had the opportunity to be on the television show, "The Doctors", last month.  They are running the piece tomorrow, here's the link to find local listings and times:  http://www.thedoctorstv.com/ They came to our house and interviewed all 5 of us. A week later, Noah, Alexis and I went out to Hollywood to the Paramount Studios to be on the set with them.  It was ...

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Retta Beery posted on March 05, 2012
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