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Entries for March 2014

20
Noah, Alexis, and I had the great pleasure of sharing our story at TEDx Youth in San Diego (November 2013).  The link has recently been added to youtube:  https://www.youtube.com/watch?v=-q0jfvtTPf4 Noah and Alexis have a passion to share their story and I continue to be amazed at the way they are able to communicate to the audience.  We were so blessed to be a part of TEDx Youth a...

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Retta Beery posted on March 20, 2014
01
Noah, Alexis, and I were honored to be able to join Life Technologies and Thermo Fisher on World Rare Disease Day on Friday, February 28th.  We passed out blue ribbons to show support for all of the many families struggling with Rare Disease and to share information with so many who are unfamiliar with the staggering numbers of Rare Disease.   "Rare and Genetic Diseases affect approxima...

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Retta Beery posted on March 01, 2014