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14
As we enter into the new year, my Hope for the future of medicine is strong.  There have been many advances made in the past few years and we have witnessed many lives that have been changed.  Answers.  Treatments.  Miracles.  With the promise of hope so close to home, we have also witnessed many lives that have not had such a positive outcome.  Lives that are hanging...

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Retta Beery posted on January 14, 2015
04
Dystonia continues to effect a huge amount of people in the world and yet so many have never heard of it.  We continue to find so many other patients, just like Noah and Alexis, that are misdiagnosed.  There is a petition to make September the Dystonia Awareness month.  Please consider signing the petition so that more people will understand what Dystonia is and more people will be ...

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Retta Beery posted on September 04, 2014
20
Noah, Alexis, and I had the great pleasure of sharing our story at TEDx Youth in San Diego (November 2013).  The link has recently been added to youtube:  https://www.youtube.com/watch?v=-q0jfvtTPf4 Noah and Alexis have a passion to share their story and I continue to be amazed at the way they are able to communicate to the audience.  We were so blessed to be a part of TEDx Youth a...

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Retta Beery posted on March 20, 2014
01
Noah, Alexis, and I were honored to be able to join Life Technologies and Thermo Fisher on World Rare Disease Day on Friday, February 28th.  We passed out blue ribbons to show support for all of the many families struggling with Rare Disease and to share information with so many who are unfamiliar with the staggering numbers of Rare Disease.   "Rare and Genetic Diseases affect approxima...

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Retta Beery posted on March 01, 2014
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