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11
Genetic Alliance hosted a webinar series, "What about Privacy and Progress in Whole Genome Sequencing?"  I had the honor to participate on one of the panels last month on August 13th.  As I shared our family's story with whole genome sequencing and the answers it uncovered for Noah and Alexis, I shared my thoughts on needing this diagnostic tool to advance personalized medicine.  I ...

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Retta Beery posted on September 11, 2013
03
On Friday, June 14, 2013, the Smithsonian Museum of Natural History opened "Unlocking Life's Code", an exhibit that showcases the discovery of DNA and the Human Genome.  Our family had the opportunity to attend a reception the night before the opening.  We listened as Eric Green, the director of the NHGRI, shared the details of the project and how it came about.  We also were comple...

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Retta Beery posted on July 03, 2013
16
Wednesday's Battelle Report was followed by Thursday's Supreme Court Ruling for no more gene patenting on naturally occurring genes.  This was a huge win for scientists, medical personnel, and, especially, for individuals.  What does this mean for us?  For one things, if we have a mutation that has been found and we want to know if our children have the same mutation, the cost of ha...

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Retta Beery posted on June 16, 2013
15
The Battelle Report was released on Wednesday, June 12th, and our family was thankful to be at the Capital to hear it in person.  Our government's initial investment of $3.8 billion into the Human Genome Project has driven $796 billion in economic impact from 1988 to 2003. A profound impact on our economic growth!  United for Medical Research also reported the total economic impact of ge...

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Retta Beery posted on June 15, 2013
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