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12

Noah and Alexis continued with all their countless hours of therapy, doctor visits and treatments.  By 18 months, they had both undergone a large variety of testing, including metabolic testing which ended up being a 3 month process and over 100 blood draws, an endoscopy, nuclear med with follow through, catheterization, EEG's, CAT scans, etc.  They had literally gone through more testing by 18 months than the average human will go through in a lifetime.  

At 20 months of age, Alexis had gone through 2 MRI's, and, after switching neurologists, our new neurologist ordered an MRI on Noah.  This would prove to be life changing in many ways.  Noah's MRI came back showing brain damage in the ventricle area of his brain, which was a definitive diagnosis of Cerebral Palsy.  Joe, my husband, and I were overwhelmed with a mixture of feelings.  We had been praying for an answer, asking to find out what was going on with them, hoping the tests would help.  We had an answer and were relieved to finally know what was going on with both of them.  However, we had also been praying for a miracle, a complete and total healing of all their symptoms, if you will.  We were heart broken.......

Diagnosis made, we moved forward and embraced information and determined to give our kids the best life possible with the most opportunities available.  

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Retta Beery posted on July 12, 2010
10

Our oldest son, Zach, was born on October 25, 1993.  He was an easy baby, reached his developmental milestones early and was very happy.  His twin siblings, Noah and Alexis, were born on August 16th, 1996.  Their birth was an easy one as they came into this world in a vaginal birth delivery and we went home the very next day.  We were so excited to bring home the two new additions to our family.  However, within the first few hours, we knew that our world had changed dramatically as they continued to cry, non-stop.  

Noah and Alexis were colicky for 15 months.  They cried, day and night, and took 5 to 10 minute naps.  They wouldn't sleep through the night and threw up multiple times, each one, every day.  We had stepped in to a new journey in our lives, one that proved to be challenging and, at some points, overwhelming.

I took Noah and Alexis to their 9 month well check up at their pediatrician's office.  Upon examination of the two, she was visibly concerned.  They were not reaching any of their developmental milestones, they were both completely floppy and unable to hold up their heads, bodies, etc. and they continued to throw up massive amounts, every day.  She sent us to an early intervention program, a pediatric neurologist and a gastroenterologist to have upper GI's done.  The upper GI's came back fine. The early intervention program deemed them "developmentally delayed" and the neurologist ordered an MRI on Alexis right at one year of age.  The MRI came back normal and the twins started physical therapy, occupational therapy, speech therapy and play therapy right around their first birthday.

We entered into a new world, a change from the path we had been on.  It rocked us, as a family, and, yet, grew us closer together in so many ways.  God was faithful to strengthen us through the storms.

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Retta Beery posted on July 10, 2010 Article Rating
19

Our twin children, Noah and Alexis, had been diagnosed with Cerebral Palsy when they were 20 months old.  Noah had an MRI  that showed brain damage in his ventrical area (PVL) and Alexis was diagnosed under the assumption that they both lost oxygen while in the womb.  Alexis had undergone three MRI's with no damage found, although she was much more physically challenged than Noah.

Their function and abilities started to improve after years of therapy.  However, Alexis started to show signs of regression around her 5th birthday.  I was praying for specific guidance from God about something completely different when He led me back into research for Alexis.  Alexis had lost the ability to walk, chew her food, swallow and talk by 11 am.  She would tremor for hours at a time with her eyes rolling up into her head, it was as though she was no longer there and we could no longer reach her.

God led me to an 11 year old article that was put in the midst of current research materials on Cerebral Palsy.

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Retta Beery posted on May 19, 2010 Article Rating
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