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Dystonia Related Links

Retta Beeryhttp://www.kusi.com/story/26195662/120m-donated-to-rady-childrens-for-pediatric-genetic-institute?autoStart=true&topVideoCatNo=default&clipId=10438642


Noah, Alexis, and I were honored to be a part of an announcement on Monday at the Rady's Children

8/8/2014

    Retta Beeryhttp://pndassoc.org/

    9/11/2013

      Retta BeeryAlex has a mystery diagnosis, while his family is searching for answers....
      http://vimeo.com/51270922

      3/13/2013

        Retta BeeryLink for different forms of Dystonia and individual gene tests noting specific mutations:
        http://omim.org/search?index=entry&start=1&limit=10&search=dystonia&sort=score desc, prefix_sort desc

        3/12/2013

          Retta BeeryMyclonic Dystonia
          http://omim.org/entry/159900?search=dystonia&highlight=dystonia

          3/12/2013

            Retta BeeryDystonia Medical Research Foundation
            http://www.dystonia-foundation.org/

            3/12/2013

              Retta BeeryDystonia fact sheet from the NIH http://www.ninds.nih.gov/disorders/dystonias/detail_dystonias.htm

              3/2/2013

                Retta BeeryRetta BeeryI just saw this from the Mayo Clinic. It has some good information http://www.mayoclinic.com/health/dystonia/DS00684/DSECTION=symptoms

                3/2/2013

                  Retta BeeryNORD recognizes Jack Klugman's efforts for rare disease http://www.rarediseases.org/news-events/news/klugman-2012

                  3/2/2013