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The Beerys Dystonia Journal

We hope that this journal will help others better understand one family's journey with Dystonia.

Sunday, February 05, 2012
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02
I'm in San Francisco, getting ready to speak to the Presidential Commission for the study of Bioethical Issues. It's my hope and prayer that I would be a voice for all those patients that don't have a voice. I'm praying that God will speak through ...

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13
I flew back out to Las Vegas on Wednesday, January 11th, to attend what I thought to be a panel discussion with Scientific American.  Instead, it was, what I believe they referred to, as a "sofa chat".  The venue was quite unique, held at t...

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13
Noah, Alexis and I flew out to Las Vegas on Sunday for a press event that took place just prior to the CES event.  It was the unveiling of the latest and greatest gadgets for 2012.  Life Technologies was unveiling their new Ion Proton Genet...

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08
Hello, A producer came out this weekend with her crew to shoot a piece for NOVA which is due to air in the spring of 2012.  Our family was thoroughly impressed with her knowledge of DNA sequencing, her questions and her approach.  We are...

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